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ABOUT
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GET INVOLVED
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SUPPORT OUR NONPROFIT

​How to help

-Volunteer for a project

-Donate funds 

-Become an event sponsor

-Share us on social media 



Our Mission

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

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Our Vision

We aspire to be the largest recognized nonprofit organization helping Lissencephaly families worldwide

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Our Values

Integrity - being fair and sincere to the families we serve 

Teamwork - working as a team within the foundation but also the working with the members of our little community.

Family focused- striving to provide education and support to the families we serve.

Empowerment - providing a sense of security for all Lissencephaly families through education & support

What is Lissencephaly?

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Lissencephaly is a rare neurological disorder that affects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.

What does the Lissencephaly Foundation do?

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We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. Promoting a day of awareness through city and state proclamations & hosting events. We bring families together from all over the nation via family gatherings & conferences.

WE NEED YOUR HELP!
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Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.

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