SUPPORT OUR NONPROFIT
How to help
-Volunteer for a project
-Become an event sponsor
-Share us on social media
Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.
We aspire to be the largest recognized nonprofit organization helping Lissencephaly families worldwide
Integrity - being fair and sincere to the families we serve
Teamwork - working as a team within the foundation but also the working with the members of our little community.
Family focused- striving to provide education and support to the families we serve.
Empowerment - providing a sense of security for all Lissencephaly families through education & support
What is Lissencephaly?
Lissencephaly is a rare neurological disorder that affects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.
What does the Lissencephaly Foundation do?
We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. Promoting a day of awareness through city and state proclamations & hosting events. We bring families together from all over the nation via family gatherings & conferences.
WE NEED YOUR HELP!
Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.