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​How to help

-Volunteer for a project

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Our Goal

To spread awareness through proclamations, awareness events,& attire. To provide a sense of hope to new and veteran families. To facilitate a research team specializing in lissencephaly research. To further educate parents in a multitude of ways.

Our Mission

Empowering Families & Educating Communities by hosting awareness events & family gatherings. Supporting families with informational packets & care packages. Spreading awareness of Lissencephaly to create a more accepting world around us.

What is Lissencephaly?

Lissencephaly is a rare neurological disorder that effects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.

What does the Lissencephaly Foundation do?

We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. We help promote a day of awareness & events. We bring families together from all over the nation via family conferences/conventions.

WE NEED YOUR HELP!

Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.

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© Founded in California 2019

Contact Us:

General info/inquiries - lissfoundation@gmail.com

President - kara@lissfoundation.org

Vice President - misty@lissfoundation.org