​How to help

-Volunteer for a project

-Donate funds 

-Become an event sponsor

-Share our values on social media 

Our Mission

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

Our Vision

We aspire to be the largest recognized nonprofit organization helping Lissencephaly families worldwide

Our Values

Integrity - being fair and sincere to the families we serve 

Teamwork - working as a team within the foundation but also the working with the members of our little community.

Family focused- striving to provide education and support to the families we serve.

Empowerment - providing a sense of security for all Lissencephaly families through education & support

What is Lissencephaly?

Lissencephaly is a rare neurological disorder that effects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.

What does the Lissencephaly Foundation do?

We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. We help promote a day of awareness & events. We bring families together from all over the nation via family conferences/conventions.


Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.

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© Founded in California, USA 2019

Contact Us:

General info/inquiries - lissfoundation@gmail.com

President - kara@lissfoundation.org

Vice President - misty@lissfoundation.org