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Kara Jones

President/CEO & Founder

Very involved in the Liss community & plan to do great things within this foundation to spread awareness & bring families together. Founder of Cephaly Convention in 2014. 

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Misty Harlan

Vice President/COO & Co-Founder

Special needs and CBD advocate. Mom and biggest supporter of my Lissencephaly girl. Eager to bring awareness and a bigger sense of community to our Liss families!

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TBA

Treasurer/CFO

To Be Announced

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TBA

Region 1 Director 

To Be Announced

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TBA

Region 2 Director 

To Be Announced

Our Volunteers

  • Erin King - Family Map Specialist

  • Hillary McNerney - Proclamation Coordinator

  • Joanne Lovell - Smile Project Manager

  • Keli Boatman - Volunteer Coordinator

  • Amy Tarpein - Store Manager

INTERNATIONAL COORDINATORS:

  • ​CANADA - Brittany O'Connell & Breanne Bruce

  • AUSTRALIA - Bec Vittiglia-Collins & Renae Telo

  • UNITED KINGDOM - Katy and Phil Day & Leonie Gray
     

REGIONAL GATHERING HOST FAMILIES:

 

USA

  • NEED VOLUNTEER - Region 1

  • Kara Jones & Misty Harlan - Region 2

  • April Westerman Dill - Region 3

  • Kelli Boatman & Malinda Reeves - Region 4

  • Candice Streebel - Region 5

  • Monique Lovely - Region 6

CANADA 

*Preferred Cities

  • Region 1*Vancouver

  • Region 2 *Toronto

AUSTRALIA

  • Region 1*Perth 

  • Region 2 *Sydney

UNITED KINGDOM

  • Region 1*Blyth

  • Region 2 *Birmingham/London

  • Region 3*Dublin

USA

AUSTRALIA
CANADA
UNITED KINGDOM

© Founded in California, USA 2019

Contact Us:

General info/inquiries - lissfoundation@gmail.com

President - kara@lissfoundation.org

Vice President - misty@lissfoundation.org