RESOURCES

Check out our map to see if there's another Liss family near you! If you'd like to be added to our map please email us at lissfoundation@gmail.com! We use this map to connect new families & for organizing our Regional gatherings.

COMING SOON IN 2019!

Condolences package - This is a gift from us to a grieving lissencephaly family who loses their child. We hope to launch a sponsoring program for those of you who would like to help contribute to paying for the packages. The more sponsoring we get the more packages we are able to send to grieving families. We would eventually like this program to help aide families with funeral expenses. This program was started in memory of Landon Johnson.

Packet Of Hope - This will be available in paper and PDF form, we can mail them or email them to new Lissencephaly families. Each packet contains a sense of hope, it will contain photos and stories of individuals with lissencephaly. With this we hope to help guide new families through those rough days of diagnosis, and shed some light on what this life really is.

Facebook:

Pages-

Lissencephaly Foundation Inc -Lissencephaly Nonprofit

https://www.facebook.com/lissencephalyfoundationinc/

Palmetto Harmony - CBD products

https://www.facebook.com/likepalmettoharmony/

The Parker Lee Project

https://www.facebook.com/theparkerleeproject/

Delivering Fancy Inc - Gift boxes for moms

https://www.facebook.com/deliveringfancy/?ref=br_rs

Embrace Life foundation

https://www.facebook.com/Embrace-Life-Foundation-827189144098414/

Support Groups-

Lissencephaly Network

https://www.facebook.com/groups/2521975802/

Lissencephaly

https://www.facebook.com/groups/lissencephaly/

Websites:

Lissencephaly informational website

https://www.ninds.nih.gov/Disorders/All-Disorders/Lissencephaly-Information-Page

Informational website

https://www.webmd.com/brain/what-is-lissencephaly 

Rare Diseases website

https://rarediseases.org/rare-diseases/lissencephaly/ 

Lissencephaly specialist - Dr. Dobyns

https://www.seattlechildrens.org/directory/william-b-dobyns/

Cephaly Convention/Family conferences

https://cephalyconvention.wixsite.com/mysite-1

Parker Lee Project - Help with Help Help with Medical equipment

https://www.theparkerleeproject.org

Embrace Life Foundation 501c3 - Help with Help with medical equiptment

Embracelifeut.org

Morgans Wonderland - Accessible theme park

https://www.morganswonderland.com

Waterway babies Neck ring for swimming 

https://waterwaybabies.com

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James' Story Time

Coming Soon in 2020!
Resource packets &
New family packets!

Join James while he reads stories via his facebook page, he also takes special requests!

Welcome to Holland Poems

These words have helped many Special needs families through the diagnosis process & provided a sense of hope. I hope these will help you also. 

© Founded in Redding, Ca 2019

Contact Us:

General info/inquiries - lissfoundation@gmail.com

President - kara@lissfoundation.org

Vice President - misty@lissfoundation.org