FAMILY RESOURCES

Check out our map to see if there's another Liss family near you! If you'd like to be added to our map please email us at lissfoundation@gmail.com! We use this map to connect new families & for organizing our Regional gatherings.

We were able to send out care packages to over 35 Lissencephaly families all over the US during the 2020 COVID-19 pandemic. Thank you to all who donated supplies & cash to help cover costs.

If you are a Liss family in need of something please feel free to reach out, we are no longer accepting applications but we may have some extra items we could send you.

PROGRAMS FOR FAMILIES

CONDOLENCES PACKAGE

INFORMATIONAL BROCHURES

PACKET OF HOPE

PANDEMIC CARE PACKAGE

Not currently accepting applications
Equiptment Grants
Coming soon!

SLEEP SAFE BED GIVEAWAY 2019

CONGRATULATIONS to the Crawley family in Oregon. A huge Thank you to our generous donor and to all who applied for the 2019 sleep safe bed. We hope to do this again in the future!

Family Resources

Facebook:

Support Groups-

Lissencephaly Network

https://www.facebook.com/groups/2521975802/

Lissencephaly

https://www.facebook.com/groups/lissencephaly/

Pages-

Lissencephaly Foundation Inc -Lissencephaly Nonprofit

https://www.facebook.com/lissencephalyfoundationinc/

Palmetto Harmony - CBD products

https://www.facebook.com/likepalmettoharmony/

The Parker Lee Project

https://www.facebook.com/theparkerleeproject/

Delivering Fancy Inc - Gift boxes for moms

https://www.facebook.com/deliveringfancy/?ref=br_rs

Embrace Life foundation

https://www.facebook.com/Embrace-Life-Foundation-827189144098414/

Websites:

Informational website

https://www.ninds.nih.gov/Disorders/All-Disorders/Lissencephaly-Information-Page

Informational website

https://www.webmd.com/brain/what-is-lissencephaly 

Rare Diseases website

https://rarediseases.org/rare-diseases/lissencephaly/ 

Lissencephaly specialist - Dr. Dobyns

https://www.seattlechildrens.org/directory/william-b-dobyns/

Cephaly Convention/Family conferences

https://cephalyconvention.wixsite.com/mysite-1

Parker Lee Project - Help with Help Help with Medical supplies

https://www.theparkerleeproject.org

Embrace Life Foundation 501c3 - Help with Help with medical equipment

Embracelifeut.org

Morgans Wonderland - Accessible theme parke park

https://www.morganswonderland.com

Waterway babies Neck ring for swimming 

https://waterwaybabies.com

Subscribe to our site & receive monthly updates

James' Story Time

Join James while he reads stories via his facebook page, he also takes special requests!

Welcome to Holland Poems

These words have helped many Special needs families through the diagnosis process & provided a sense of hope. I hope these will help you also. 

© Founded in California, USA 2019

Contact Us:

General info/inquiries - lissfoundation@gmail.com

President - kara@lissfoundation.org

Vice President - misty@lissfoundation.org