Empowering Families. Educating Communities.
Check out our map to see if there's another Liss family near you! If you'd like to be added to our map please email us at firstname.lastname@example.org! We use this map to connect new families & for organizing our Regional gatherings.
We were able to send out care packages to over 35 Lissencephaly families all over the US during the 2020 COVID-19 pandemic. Thank you to all who donated supplies & cash to help cover costs.
If you are a Liss family in need of something please feel free to reach out, we are no longer accepting applications but we may have some extra items we could send you.
SLEEP SAFE BED GIVEAWAY 2019
CONGRATULATIONS to the Crawley family in Oregon. A huge Thank you to our generous donor and to all who applied for the 2019 sleep safe bed. We hope to do this again in the future!
Websites & Social Media
Family Support Groups-
Lissencephaly Network -
Our Nonprofit fb page
Lissencephaly Foundation Inc -Lissencephaly Nonprofit
NIH Informational website
WebMD Informational website
Rare Diseases website
Lissencephaly specialist - Dr. Dobyns
Welcome to Holland Poems
These words have helped many Special needs families through the diagnosis process & provided a sense of hope. I hope these will help you also.